Make your own free website on Tripod.com

 

Welcome to the world of Fibromyalgia. It isn't a pleasant world, but at times you can cope. There are times that you can not, and you do your best not to scream at the injustice that has been dealt you. Let me try to explain what FMS or Fibromyalgia is.  First the technical/medical terms; Fibromyalgia is a disease of the connective tissues, generally effecting the tissues at the joints, however it can and does effect ALL connective tissue. Now my explanation. It does effect the connective tissue, It doesn't stay in one place all the time, it moves & generally goes where it wants to, it feels like Arthritis but 100% worse. There are days when you can't walk and other days when you can't use your hands/arms, but then there are days when neither of these extremities are effected. Almost always you can't sleep. Now I don't mean you don't sleep what I mean is that even though you sleep you are not resting, so the sleep is non productive or as the Doctors term it non restorative. It generally effects only women however, there are cases of men suffering from it. It is not an inflammation of the joints, or the connective tissues it attacks...it is just pain!!! And let us not forget (no pun intended) about the memory loss which can be either long term or short. I am effected with short term memory loss better known as "Fibro Fog". There are a list of other symptoms, syndromes. I will try to help you understand them as my page grows and as I better understand them. The strangest thing is they seem all unrelated.  There is no concrete cause, no cure or treatment is a hodge podge of medicines, some work some don't. You just have to keep experimenting until you find one that will. In fact one medication may not work today but next week it might. On top of all this, there is no test for this disease, so when you go to an uninformed Doctor and tell him your symptoms he will either misdiagnose or tell you there is nothing wrong with you. Ya know crazy hypochondriac!! Of course this comes after a barrage of tests that would make the Marquis de Sade look like Little Bo Peep!! Depression does come, but not right away. Who wouldn't be depressed if you went through hundreds of tests over a period of years only to be told there is nothing wrong with you, but you still can hardly walk or use your hands and arms, and at times your butt feels like it is going to fall off. But the support of loved ones and friends are your best defense, and a Doctor who is knowledgeable, and they are hard to find.
I'm just starting my page on this disease, and will be adding to it. For the time being here are a few links that might help.

Fibromyalgia Webpage

Fibromyalgia-Coping with Real Pain

USA Fibromyalgia Association

Physical Proof of Fibromyalgia

Fibromyalgia Network

Oregon Fibromyalgia Foundation

Jane's Chronic Pain and Fibromyalgia Page

FMNet/News.com
Fibromyalgia Network
(Also National Fibromyalgia Support Group)
P.O. Box 31750
Tucson, AZ 85751
Call 800-853-2929


A Patients Guide to Fibromyalgia Syndrome (FMS)

All information below is provided for the purposes of assisting FMS and CFS patients in understanding their condition.  Patients should always consult their physician for medical advice and treatment.  (the following is from "FMS, A Patient's Guide" supplied by Fibromyalgia Network.Reprinted from Arthritis and Rheumatism Journal)